Where has ROCK been? Why no writing? Lm rose above his domineering persona and said, “Fuck Off!” She pushed him into a hidden closet on the fourth step. She is OUT! She is running, diving, jumping, rolling, shouting, sobbing, vindictive, angry, broken, lost, alone and we must help her before……before she doesn’t turn around and trust us anymore. Her team is on the sidelines and she is sufferring. If you see her be gentle and slow to approach her skinless, impaired and descending self execution. She is so tired, she is so burnt, so ready to yank off her mask and spare no one a break. She is running numbers,scanning through all of her files; 001001001001001001001001001001001001 and Lm will reveal every single detail of her deeply buried pain. She will name the names, she will spit at you and she doesn’t care anymore. She hurts everyday, all day and all night and with ‘kin, not one cares to know, hear and show they respect the TRUTH. If the Onekin, (her description of her siblings are numbered as she runs a virus check through her brain NOW), stood up. If Onekin really wanted to be part of Lm’s safety net, well let’s just say Onekin has had a whole lot of information and still adores BadDad. Hurt? Hell yes it hurts. And there is more for Onekin to know. Lm is debating opening the door with so much sickening pain that it would hurt dear Onekin. Lm does not want to hurt Onekin. Or Twokin, or Threekin, or Fourkin, or Fivekin, or Sixkin, or Sevenkin. Lm only wants TRUTH. To be seen as the survivor she is. She is so insecure and was doing so well. What happened? Triggers do not go away. A gun was drawn that set off memories and Lm is wildly spinning into a tornado of such sorrow that she may not ever make it back to ROCK. She can’t live a lie, she does not trust anyone. SHE DOES NOT TRUST ANYONE! 001001001001001001001001001001001001001001001001……..
An angel from nature saw me sinking and swiftly pulled me through the fog. I had waited and waited for you to call. I heard sweet birds cooing and left my tears on the stone path to dry, for the beauty of my surroundings were stronger than my sigh. Rumbling in the trees a tiny deer appears nibbling on a plum tree bud with it’s tiny little ears. I do not frighten her for she knows we are one. I repeat “I am special”, “I am kind”, “I am full of love to give to all mankind”. LittleMe rises up from my deepest darkest space and ROCK quickly makes a move and puts her back in place. I will not let my love be taken by those who dare not see that I am grateful for myself, I at least still have me.
All aboard! It’s the Pain Train. My seat is permanent, my choices are few and I can’t go to the bar car, the toilet or be around others without making a huge fuss, therefore I choose to stay in my assigned seat. No one can help me; I own this pain. Looking out the window the world flies past and life is taking off at a speed I can’t cope with. The conductor is my nervous system colliding with my brain’s reactions to every tiny bit of stimulus. I see you and I care but I am off track and my brain signals are traveling at such a rate that I do not understand the smallest of conversations or even my own thoughts. This is not the train anyone with any healthy lifestyle wants to board; but it is packed. People are laying in the aisles and hoping for assistance, recognition and acceptance. Chronic Pain Syndrome or CPS is an official diagnosis now by WHO, (no not the band) , rather the World Health Organization. I was recently diagnosed with a severe form that has caused me to lose my vocabulary, shortened my fuses so to speak causing me to be easily startled, reacting with a scream or even sobbing as if the whole world is ending. In some ways, on some days, it actually does feel like a hopeless battle to live this life and ride this train. I have a collision of diagnosis. Degenerative Disc Disease, an inherited condition that I’ve known of since I was in my twenties turned from a back ache after gardening into the most severe form fast in my late forties. At that time I was given 20mg patches of morphine that I changed every few days. I believed this was as bad as it could get then. Yet, I was swimming, walking and riding my bicycle still. I also was cooking which I love to do. From there I slowly began to develop boney growths jutting inward toward my throat and spinal cord and I was told I had unfortunatly signs of early onset osteoporosis. I was put on a bone mineral supplement and more vitamin D and calcium was prescribed. Can’t get worse than this I thought, until it did. A spinal specialist said there was nothing that could be done. I not only have scoliosis, but also severe arthritis and various deformations head to toe. Earlier I had been sent to a university hospital rheumatologist who diagnosed me with fibromyagia, something I would not accept or grasp until I had the most severe flare I have ever had recenty. ( I am recooping now yet have a lot of work to be steadily on my feet again). The Dr.’s who upped the morphine years ago are unable to treat me now. I will say it barely takes the edge off on 30mgs daily slow release which includes fast acting oxynorm up to three times a day, muscle relaxants, anti-depressants, blah blah blah. The more boney growths, the worse my spine becomes. Earlier I was walking with a rolater and or crutches or a cane. Sitting was and remains one of my worst enemies but as I said, my seat is assigned for life. I then contracted covid in March of this year after three vaccinations; the very first time I went out into the city I caught it. I have not regained my strength, have developed chronic asthma and sleep as if in a coma or swing to the other extreme, experiencing severe insomnia and nothing will knock me out. My head hurts daily, I now have tinnitus and vision issues. The train chugs along and now I am in cue for a pain specialist rehabilitation hospital north of Stockholm. I never write about physical pain because I don’t know how to project the feeling with words so that others understand. I know that a really nice man, the husband of an American friend said the right thing one time years ago and it stuck with me. “Hello, it’s nice to see you are having what looks like a relatively good day”. It meant the world that someone knew my good days were fewer than my bad and that he also understood people like me don’t get better, we are chronically living in a state of pain that can ease up a bit but never leaves us completely blissful. For all the readers and writers out there who are living with CPS, I understand you now. I am sorry that I did not understand what my fellow passengers were experiencing until now. Mental health is important to address for everyone and somehow I let mine fall apart. Hopefully after my stay in the Pain Rehabilitation hospital (Uppsala University Hospital) I will be able to read with focus, write with more clarity, listen to others and converse, start walking for my overall health and socializing a bit more with those who have hung in there with me. I will still ride the train with you and I will try to reach out to all of you much more. Remember, you are not alone. We are on board together.
She would love the old farmhouse and joke about marijuana not being legal in Sweden. She would look at all of my art and feel something. I would have a hard time keeping up the conversation because of my fibromyalgia flare, non stop headaches and chronic pain syndrome. My spine wouldn’t let me cook her one of my famous soups so I would put out a nice bottle of red wine, lay fresh wild flowers by her glass and talk about how fucked up the world is and how we can’t do enough in our short lives to save it. I think I could manage to make a Västerbotten pie which is a Swedish favorite and saute kale, shredded cauliflower and sesame seeds with chili flakes and grill corn. I wonder if she likes caviar. My pain would overwhelm me and I would need extra morphine. I’d tell her how her Easter album changed me, made me feel less guilt and oppression internally from my Bible belt upbringing. I think she’d like me. Maybe I would touch her wild gray hair and talk to her about Bob Dylan and how he can’t be repeated, reincarnated and how many people idolize his ability to hit his listeners over the head with an iron skillet, while repeatedly trying to wake society up. I would serve sweet strawberries and cream and she wouldn’t care that I was in my pajamas because I hurt so much. She would probably not stay over and have ” a guy” that drives her around smoking camels in my driveway. She would hug me and I’d ask if we could take a selfie. She’d oblige and get into a black SUV with dark windows and slowly the driver would make it around the barn, past the silos and I would feel satisfied how well it all went and write a long journal entry. I would call my friends and they’d doubt me. I would have met a rockin’ icon and remember how she empowered all women to continue to stand and raise our community UP to higher ground.
In this show, on this stage, a giant yet fragile marionette is lowered slowly; as the black velvet curtains part one can see what appears to be an angel flying, sustaining herself with her own elegant wings; no one would surmise that she was not magical at all, nor that she was so delicate that any moment she could break into bits destroying the opening act. She was held together like all puppets with strings attached to, well every part of her. Above her was a monster both good and bad, one who could help her move and also yank her off stage without notice, ending her performance so swiftly that she lost her breath. The monster was made of a slew of chemicals, medicinal ones that gave her just enough energy to be amongst others and move. Some days the monster although well meaning didn’t move her at all. The monster called in her true protector, her friend since childhood with hopes he could guide her with the grief she swam in. Rock said, “other’s are also struggling to perform, to get out and do their best, to live with no strings attached. Some strings are superficial and some are real. You must learn to accept the monster made from the God’s as your friend to live a better life; Morpheus is the monster’s name.” Although Morpheus was powerful, some days even he was not enough. Some days Morpheus lifted her with ease and she glided across the stage, in flight with next to no pain and yet other times she lay in a wooden, splintered heap in her lonely marionette box. Her wings were her freedom. When she was flying she smiled and saw the world as a beautiful place despite it’s absurdities, when her wings ached and she couldn’t even flutter she sank deeper into her box and Morpheus would close her eyes awhile and there she would stay, dreaming of the old days when she flew and saw green tree tops with baby bird’s nests, lover’s hand in hand sitting on picnic blankets and all the colours on the spectrum called Life.
“Baby, don’t listen to the people who come to you and say, ” What you wanna be when you grow up?” ’cause they don’t know nothin’ ’bout our world”. That’s what Grandma said. Our country is a damned place, she says, it’s stolen. When people go and take other’s land, kidnap children from their soil and beat ’em, hang ’em, drag ’em behind they ole trucks laughin’ whiles we momma’s weepin’ they don’t get to ask you nothin’. Tall in they suits with those big white teeth smilin’ like they give a damn ’bout you. Naw. Naw. Keepin’ guns so they can be freer? That’s nonsense. See all that blood running ‘cross the front page? That’s our blood, too. They kids don’t get shot in the face. They rich and in charge. That’s the truth child, you try to stay alive and out of the way an they still come for ya. Makes me think why’s we born if we just all gonna get shot in the head, by police, gangs and the people say we got freedom, we are the best land, pledging allegiance to some heathens overcooked philosophy. Hell, Ben Franklin was right when he said the National bird should be a turkey. Can’t kill the vultures but we can slaughter indigenous people and eat from food lines. Giant cans of peanut butter, damn government cheese and those crackers get off ’cause they be mental, sick. Jesus Christ didn’t hang up on that cross for these nasty men. Granma’s in heaven and she knows what she’s talking about. She saw it all comin’. I wish I heard her when she said in my dreams “keep the babies home today”. Dear God, don’t bless America, bless those babies that went to school today. And now, Now what I really think is why, be true to the red, white and blue. Think Russian’s all evil when you’re serving the people this nauseating morning news same time Johnny Depp laughin’ ’bout Alpaca’s in a courtroom. America, you ain’t beautiful, you lost your damn minds.
Dancing with Eyes Closed; Accepting Pain as Part of Me.
In the morning there are yellow dandelions surrounding me, lifting me up with a wash of spring hope. I am rinsed in the sun’s warm rays and feel determined. I always think I will feel better than I actually do. Is that my own stupidity or perpetual stubbornness? I dress and make it to the rich Italian red wine sofa and prop my legs up on a stack of pillows. The pain starts just after I proclaim, “I am better!” and I succumb to my surroundings. The walls are a light gray panel of wood, the ceiling white, the old barn’s tin roof I can see from the sofa is a rusty burnt red with brown dried clumps of moss separating it into unsightly squares. My pain I feel is visualized as an electric zap of steel, sharp silver, shooting up my legs and my silent scream is a maze of terrestrial hues. Pain shares with me every drop of it’s colour, of it’s beauty and it’s sorrow; like the northern lights and milky way it is so breath taking and hard to believe that it is real. Living in a state of chronic pain is anxiety provoking. My mind is a puree of sounds and I am often perplexed. Why can’t I be fixed? Why must my colours be so rare and overworked? My self portrait is black and white as I spilt any hope of beauty out onto the porous surface beneath me. “My pain”, I said to the chronic pain psychologist, “I’ve accepted.” My mind lied that day. I hate it, I hate my body and my bruises both superficial and within. No amount of prayer or drugs give me peace and like the wild scribbling made by a toddler with crayons I lay in a chaos of colour; I am a bottle with layers of dripping wax from many different tints of candles. I am beneath the surface, beneath the beauty, buried in a colour of pain. My eyes close and I stare at the daylight as if my eyelids were window shades. I don’t see why I should open my eyes except to write this pathetic complaint that haunts me. I want to be a happy rainbow one more time. One more moment of brilliance is all I ask. Like any desperate lover, Pain beckons me back, takes hold of me and says, ” I will never leave you alone again.”
Stalking my dreams, again I find you there, my fighting to wake and escape from unwanted memories. Why don’t you grieve, hurt or suffer? Why must I lug your trunk of tricks and misery everywhere I go? I feel sick when I come across your photograph smiling and surrounded by good people who don’t know your dirty and deeper secrets. I wonder if you know your own plays, remember the truth of who you are. No one is guaranteed a good life and that alone makes me doubt often any holiness, or sacred recipes exist for us plain ole daily folk. We get sick, die too young or are burdened with poverty, mental illnesses and responsibilities. We don’t run. Step by step we inch toward death with unfulfilled wishes that seem frivolous and only for the one’s that break the rules, sprint from their trunk overflowing with the messes they create, leaving behind their trash for the good doer’s to deal with. In my dream I beg to anyone, an entity of love and life to bar you from my sleep. I know that your dreams are not full of the pain you left others with. You dream of walks along the water, delicious cuisine, fancy clothes and being adored. You do not dream of the children you abandoned or your family that is simple and have stopped wanting more. I will never be “paid back”, you will get the golden egg and my heart will still stray sometimes to unwanted thoughts of you. Tiny bits of pain slip into my illusions, completely disagreeing with my longing for peace each night. Dear Holier, hopefully stronger Spirits fill my night with those who love me and lock the trunk so not even a thief’s expertise can reveal more tonight. Dreams please be kind.
In the deep green, the lychee layers sprawl; in the deep green my heart expresses all. Above, soft blue sprinkles through the trees, a sigh of light lands on me. The stones hold memories, ancient muted songs of those who walked before me with their own dreams strong. I pause to speak to the spirits around me, I call for them to help me see. Silently my grandmothers with wise women sing, of love, death and all in between. The wind so cool playing with branches gently swaying as my soul enhances. I want to weep yet I am boldly compelled to seek out guidance and perhaps a spell. If I can heal my child’s pain with divinity, I beg that you share your sacred recipe. Dear Mother of our forests breath, I will forsake all for my bequeathed. Take her pain and rinse her despair, show me again how she will fair. Within herself, give back her smile and lead her through this desperate trial. I walk away and ask once more for you to open her heart’s closed door. A Mother so vast, so grand as you must reach out and take her hand. Remember when she was so content, her love so easy, her innocence? Deep green forest and strong tall trees, lift her fog. Blessed Be.
RealStuff by RealMe 
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